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Wed 15 Jan 2025

Most people diagnosed with a less survivable cancer will die within one year.

Data released by the Less Survivable Cancers Taskforce today shows that more than half (61%) of people in Wales diagnosed with a cancer of the lung, liver, brain, oesophagus, pancreas or stomach will die from their disease within one year. 

The new analysis of existing cancer registry data shows that the average one year survival for a patient diagnosed with a less survivable cancer in Wales is just 39%. This contrasts sharply with the overall one-year survival rate for all cancers, which is over 70%.

Over 90,000 people are diagnosed with one of the less survivable cancers in the UK every year and they account for nearly half of all common cancer deaths. These cancers are overwhelmingly diagnosed at later stages compared to other cancers. Only 28% of patients are diagnosed at stage 1 or 2, compared to 54% for all cancers. This late-stage diagnosis limits the potential for treatments that could significantly improve survival rates.  

Despite their prevalence, the less survivable cancers receive a fraction (16.6%) of research funding of more survivable cancers.

Formed by charities supporting patients, the Less Survivable Cancers Taskforce is calling for government-level commitments to prioritise early detection, research funding and the development of new treatment options for these cancers with the aim of reducing the stark inequalities in prognosis. For Wales in particular, the Taskforce wants a firm commitment from the Welsh government for a national lung cancer screening programme (following an overwhelmingly successful pilot in Rhondda Cynon Taf) and a national registry for people with Barrett’s Oesophagus - a risk factor for oesophageal cancer. 

These shocking one-year survival statistics are unacceptable and it’s essential that we take urgent action to improve the outcomes for patients diagnosed with these devastating diseases. 

The time has come for a national action plan dedicated to less survivable cancers, prioritising greater awareness, faster diagnosis and more research into screening and treatment options.”

Judi Rhys MBE, Chief Executive Tenovus Cancer Care

Matthew Collins, from Aberdare, was told he had a glioblastoma brain tumour (GBM) after several months of debilitating symptoms, repeated hospital visits and even scans failed to detect what was wrong. The 37-year-old experienced “thunderclap” headaches, tonic-clonic seizures and temporary blindness, before having a stroke. 

I was dismissed by doctors as ‘just a worrier’. If I had been diagnosed earlier, I could have avoided months of hospital stays, started treatment sooner and perhaps had a better outcome. Then after diagnosis, it was devastating to be told there were very few treatment options. Treatment for brain tumours has been left behind in the 20th century.

Brain cancer needs parity with other cancers in terms of funding, research and improved outcomes. We urgently need better NHS treatments, access to trials, and to close the deadly cancer gap.” 

Matthew Collins

It is both alarming and heartbreaking to note that over half of individuals in Wales diagnosed with these diseases will lose their lives within just one year. I fully support the aims of the Less Survivable Cancers Taskforce, it is imperative that we unite to raise awareness and push for essential changes in research funding and patient care."

Delyth Jewell, MS and Plaid Cymru Deputy Leader in the Senedd

Discover the key facts for the six less survivable cancers

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