Get involved
The All-Wales Cancer Community is our way of making sure that the voices of those affected by cancer are heard by the people who make decisions and shape the cancer care landscape in Wales. On this page you can find current opportunities to get involved!
You can filter the opportunities by cancer type and location (including information about whether they are online or face-to-face), and view in full by clicking on the listings below.
This webpage is in development so if you have any feedback, please let us know of insight@tenovuscancercare.org.uk
If you haven’t already joined the All-Wales Cancer Community and would like to receive opportunities like this right in your inbox, click here to join!
End Date Nov 2024
Help give cancer patients a voice and shape research in Wales
WCRC are looking for one person from Wales to become their Lay Lead Research Partner and head up their Patient and Public Involvement group.
Eligibility
People based in Wales who have experience of cancer as a patient or carer, relevant role experience is also desirable
End Date Nov 2024
Take part in Cervical Screening Wales’s survey
Cervical Screening Wales would like women and people with a cervix, aged 20-30, to review and feedback on the invitation letter and leaflet inviting individuals for their first cervical screening.
Location
Online
Eligibility
Women and people with a cervix, aged 20-30
End Date Nov 2024
Attend the Patient and Public Interest Group meeting on medicine adherence
The All Wales Therapeutics and Toxicology Centre would like to invite you to their virtual Patient and Public Interest Group (PAPIG) meeting, they would very much like to hear the views and experiences of patients and carers and so there will be time for discussion and questions.
Location
Online
Eligibility
Anyone with the experience of being a patient or carer
End Date Nov 2024
Make “Sadmin” Simple
Marie Curie are sending a clear message to companies: that terminally ill and bereaved customers shouldn’t have to spend their precious time and energy wading through piles of complicated and upsetting admin. Join the 22,500+ people that have signed Marie Curie’s petition to make “sadmin” simple.
Location
Online
Eligibility
Anybody
End Date Nov 2024
Can you help our counselling team better understand and support the needs of neurodiverse clients?
We know that being neurodiverse can affect people in many ways and we’d like to ensure our service understands the issues you might face and supports you appropriately.
Location
Online
Eligibility
Anyone who is neurodiverse (diagnosed or self-diagnosed) and who has a current or previous diagnosis of cancer.
End Date Dec 2024
Join Velindre Cancer Centre in their new Velindre Voices
Velindre Cancer Centre is launching Velindre Voices - a means for existing and past patients and carers, and members of the wider community, to keep in touch with them, influence their work and get involved with them in whatever way suits you.
Cancer Type
All
Location
Cardiff
Eligibility
Anyone affected by cancer
End Date Dec 2024
Have Your Say! Support the National Strategic Clinical Network for Cancer by completing a survey designed to understand the emotional impact of cancer and the support services available to you.
The survey aims to understand the availability of support and identify what is needed to help manage the concerns, feelings, and emotions of patients, family members, and carers following a cancer diagnosis.
Location
Online
Eligibility
Anyone affected by a cancer diagnosis in the last 3 years, including family members and carers.
End Date Dec 2024
Llais Cardiff & Vale local project – Living with cancer
Llais Cardiff & Vale have just launched their ‘Living with cancer’ project, and are keen to hear from individuals, families and groups around their experiences of living with cancer, whether they are currently going through treatment or have had past experience of living with cancer. From what Llais have heard, they can make representations to health and social care services, to make them aware of what people think of their services and where improvements can be made.
Location
Cardiff
Eligibility
Individuals, families and groups around their experiences of living with cancer, whether they are currently going through treatment or have had past experience of living with cancer.
End Date Dec 2024
Use your experience as a patient, carer, or service user to help influence what research takes place and how it is undertaken
Health and Care Research Wales invite you to join their public involvement community. Public involvement is where members of the public share their time and personal experiences to help influence what research takes place and how it is undertaken. There are a range of involvement opportunities to choose from meaning you can give as much or as little time as you wish. You can make a real difference to research in Wales.
Cancer Type
All
Location
Online
Eligibility
Anyone who has experience of being a patient, carer or service user
End Date Dec 2024
Join the Largest Study of Melanoma Ever
MyMelanoma is a study designed to research the important current questions about melanoma and its treatment. The questions relate to treatments, the nature of the particular cancers (all cancers are a little bit different), other health matters and to lifestyles. The aim of the study is to collect high quality, detailed information which will be used as a resource by scientists to carry out research to benefit melanoma patients.
Cancer Type
Melanoma (Skin)
Location
Online
Eligibility
Anyone with experience of NHS melanoma treatment
End Date Dec 2024
Do You Know of a Non-medicine Health or Care Technology That Could Improve the Lives of People Living With Cancer in Wales?
Health Technology Wales (HTW) wants to hear about non-medicine health and care technologies that could improve the lives of people living with cancer in Wales. It is inviting health and care professionals, technology developers, academics, and members of the public to submit their ideas, to help HTW appraise these technologies and produce national guidance on whether they should be adopted in Wales.
Cancer Type
All
Location
Online
Eligibility
Anyone
End Date Dec 2024
How can we best support people with cancer to self-advocate?
Cancer Type
All
Location
Online
Eligibility
Anyone who has ever been diagnosed with any type of cancer, or has ever visited their GP with concerns about cancer-like symptoms.
If you or someone you love has been affected by cancer, our free Support Line is there for you. Just call 0808 808 1010