Get involved

End Date Jul 2024

Squamous Skin Cell Carcinoma AFTER trial

SCC AFTER is a national trial looking at effectiveness of Radiotherapy on non-melanoma skin cancer (cutaneuos squamous cell carcinoma, cSCC) We are looking for patients (and carers) to take part in a Patient Advisory Group to help improve the patient facing documents and how to make these more inclusive and understandable to all patients, and in particular older people which is the group where most instances of cSCC occur.

End Date Jul 2024

Take part in research into storytelling interventions for families affected by cancer (Cardiff University)

Could you help to understand how storytelling could promote psychological well-being in cancer patients and their families, by completing up to two online surveys? You do not need to have any prior experience with storytelling or wellbeing interventions to take part.

End Date Aug 2024

Have your say on the future of palliative and end of life care research - Marie Curie

How can palliative and end of life care be improved? Complete Marie Curie’s survey to shape future research. They need your help to shortlist 79 research questions identified in their first survey with the aim of coming up with a list of the top ten priorities for research into palliative and end of life care.

End Date Sep 2024

Cardiff and Vale Unpaid Carers Assembly - 02 October 2024

Voices Adfocad will be hosting the second annual Cardiff and Vale Unpaid Carers Assembly at Sophia Gardens Cricket Ground on October 2nd 2024, including workshops to allow the voices of unpaid carers to come through.

End Date Dec 2024

Join Velindre Cancer Centre in their new Velindre Voices

Velindre Cancer Centre is launching Velindre Voices - a means for existing and past patients and carers, and members of the wider community, to keep in touch with them, influence their work and get involved with them in whatever way suits you.

End Date Dec 2024

Join the Largest Study of Melanoma Ever

MyMelanoma is a study designed to research the important current questions about melanoma and its treatment. The questions relate to treatments, the nature of the particular cancers (all cancers are a little bit different), other health matters and to lifestyles. The aim of the study is to collect high quality, detailed information which will be used as a resource by scientists to carry out research to benefit melanoma patients.

End Date Dec 2024

Do You Know of a Non-medicine Health or Care Technology That Could Improve the Lives of People Living With Cancer in Wales?

Health Technology Wales (HTW) wants to hear about non-medicine health and care technologies that could improve the lives of people living with cancer in Wales. It is inviting health and care professionals, technology developers, academics, and members of the public to submit their ideas, to help HTW appraise these technologies and produce national guidance on whether they should be adopted in Wales.

End Date Dec 2024

How can we best support people with cancer to self-advocate?

End Date Dec 2025

Help the North Wales Cancer Patient Forum to bring a patient voice to cancer services in North Wales

Join the North Wales Cancer Patient Forum to be given opportunities to use your cancer experience to help make a difference to cancer care in North Wales. By working together with cancer teams across the region, they aim to ensure that the patient voice is heard, especially when designing or refreshing services.