Get involved
The All-Wales Cancer Community is our way of making sure that the voices of those affected by cancer are heard by the people who make decisions and shape the cancer care landscape in Wales. On this page you can find current opportunities to get involved!
You can filter the opportunities by cancer type and location (including information about whether they are online or face-to-face), and view in full by clicking on the listings below.
This webpage is in development so if you have any feedback, please let us know of insight@tenovuscancercare.org.uk
If you haven’t already joined the All-Wales Cancer Community and would like to receive opportunities like this right in your inbox, click here to join!
End Date Feb 2025
Share your experience of long waiting times
Sharing your experience will help demonstrate the personal impact of waiting a long time for cancer treatment. This could be used to encourage Government and health boards do more to improve and reduce waiting lists.
Location
Online
Eligibility
Anyone who has experienced long waiting times for cancer treatment in the last year
End Date Feb 2025
Survey for a Potential New Lung Cancer Screening Programme in Wales
Public Health Wales are carrying out a survey looking at how a new lung cancer screening programme can be introduced in Wales
Location
Online
Eligibility
Current or previous tobacco smokers aged 50-75 years old living in Wales
End Date Mar 2025
Do you have heartburn or acid reflux?
Researchers from Queen Mary University of London are looking for people to do an interview about acid reflux and cancer screening. We are looking for people aged 55-79 who experience regular heartburn or acid reflux and take medicine to manage the symptoms to take part in a 30-60 minute interview and will provide a £25 voucher to all who take part.
Location
Face to face and online
Eligibility
Men (55-79 years old) and women (65-79 years) who regularly take medicine to manage their acid reflux
End Date Mar 2025
Have you had treatment for cancer?
Cardiff University are looking for steering group members to help researchers develop new cancer studies by sharing feedback as someone who has lived experience of cancer treatments as a patient or carer.
Location
Online
Eligibility
Anyone who has lived experience of cancer treatments as a patient or carer
End Date Mar 2025
Senedd Cymru Inquiry into the future of general practice in Wales
The Health and Social Care Committee wants to hear your thoughts on the future of GP services in Wales. They’re looking for patient experiences, including how easy it is to get care, how well GP services manage patient needs, the quality of care you receive, and how much you trust the service. Your feedback can help shape the future of general practice.
Location
Online
Eligibility
Anyone in Wales
End Date Mar 2025
Make Your Voice Heard
The new Older People’s Commissioner for Wales, Rhian Bowen-Davies wants to hear from as many people as possible about the action that would help to improve older people’s lives, and the ways their work can support the delivery of these outcomes.
Location
Online
Eligibility
People aged 60 and over
End Date Mar 2025
Invitation for those affected by cancer to comment on draft guidance on individualised mRNA cancer immunotherapies
The Medicines and Healthcare products Regulatory Agency (MHRA) wants to hear your thoughts on new guidance on developing individualised mRNA cancer immunotherapies (sometimes called “personalised cancer vaccines”) Section 8 of the guidance is about information for patients, healthcare professionals, and the public. As someone affected by cancer, your opinion on this part is especially important to us.
Cancer Type
All
Location
Online
Eligibility
Individual cancer patients, their families or other caregivers, cancer patient groups.
End Date Apr 2025
Share the cancer patient view on frailty screening and prevention
Researchers and doctors from Cardiff Metropolitan University and the Acute Oncology Service of University Hospitals of Wales are seeking your views to help them understand how research on frailty can improve the needs of older adults affected by cancer and shape future research.
Location
Online
Eligibility
Cancer patients aged 65 and over, their family members, close friends or carers
End Date Apr 2025
Understanding the level of body image concerns present among young adults (18-39 years) who have or have had cancer as part of some PhD research conducted at the University of Surrey
The University of Surrey are conducting a study to try to understand the level of body image concerns present among young adults (18-39 years) who have or have had cancer, as well as strategies they would endorse to help reduce concerns. Their aim is to increase understanding in this area and to inform the development of resources to help improve body image in this group.
Location
Online
Eligibility
Young adults (18-39 years) who have or have had cancer
End Date Dec 2025
Help the North Wales Cancer Patient Forum to bring a patient voice to cancer services in North Wales
Join the North Wales Cancer Patient Forum to be given opportunities to use your cancer experience to help make a difference to cancer care in North Wales. By working together with cancer teams across the region, they aim to ensure that the patient voice is heard, especially when designing or refreshing services.
Cancer Type
All
Location
North Wales
Eligibility
Anyone affected by cancer in North Wales
End Date Jul 2027
Join the largest study of melanoma ever
MyMelanoma is a study designed to research the important current questions about melanoma and its treatment. The questions relate to treatments, the nature of the particular cancers (all cancers are a little bit different), other health matters and to lifestyles. The aim of the study is to collect high quality, detailed information which will be used as a resource by scientists to carry out research to benefit melanoma patients.
Cancer Type
Melanoma (Skin)
Location
Online
Eligibility
Anyone with experience of NHS melanoma treatment
If you or someone you love has been affected by cancer, our free Support Line is there for you. Just call 0808 808 1010