What do participants need to do: look through the prototype and answer some questions
How long will it take? 40-60 minutes
Will participants get paid? No
Who can take part? Adults living in South East Wales who have had an experience of cancer but do not have cancer now, people who have cared for a family member with cancer in the past but are not currently caring for them, people who have an understanding of cancer.
Location: Participants can be visited by a researcher in their homes or participants can come to Heath Park Campus, Cardiff University
Patients with advanced cancer and who take blood thinning medication could experience bleeding, if they stop it could reduce the risk of bleeding but there may also be a risk of a blood clot.
The SERENITY study team are testing the usability of an early version of a shared decision making support tool (mobile phone app) that is being designed to support patients with advanced cancer make decisions with their doctor about continuing or stopping blood thinning medication in the last months of life.
They are looking for people over the age of 18 who live in South East Wales and have knowledge about cancer and cancer services. Participation is voluntary as this is a research project. They will ask you to look through the app (on a mobile device provided by the research team) and talk to a researcher about what you think about it.
The app is not ready for use with patients who have cancer and so they can only test it with people who do not currently have cancer or who are caring for someone with cancer. They are going to use the findings to make improvements to the shared decision-making support tool to get it ready to test with patients with cancer next spring, before it gets used in a large European and UK trial of patients with advanced cancer.
To find out more about taking part please contact edwardsm28@cardiff.ac.uk
